Parents on Care Team Make a Difference
January 8, 2010Imagine being a parent and taking care of your 2 month old premature baby who is plagued with multiple infections, a swelling belly, and needs multiple surgeries to fix an undetected intestinal torsion (or twisting) caused my infections. Then during the recovery time, having your baby hemorrhage during a liver biopsy and be rushed to Lucile Packard Children’s Hospital.
This sounds terrifying and it is a story, Lilia Martinez lives to tell about her now 2 year-old son, Ricardo. With the ADVANCEMENTS at LPCH, doctors determined that Ricardo needed a combined liver and intestinal transplant. Within less than a month, the team at LPCH successfully replaced Ricardo’s liver and small intestine. However, Lilia noticed that her son had shortness of breath once his breathing tube was removed. The doctors took her concern seriously and called in a team to help FIND ANSWERS. Within minutes Ricardo was being prepped for another surgery that remedied the problem. “That day they gained my complete trust,” Lilia said.
The COMPASSIONATE CARE offered at LPCH doesn’t stop there. The Family-Centered Care Program recognizes that a partnership with parents is the key to quality health care, which was developed by transplant experts and now has grown to encompass every specialty at the hospital. “I liked that they took my opinion seriously. What I said mattered,” stated Lilia.
For more information about Ricardo’s story and the Family-Centered Care Program, click here.
